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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How to cope? I thought I was doing well. Yesterday I went to a movie and lunch with a friend. Driving home I started to get a little

A MyParkinsonsTeam Member asked a question 💭
Newington, CT

Lightheaded. When I came home I staggered to the door fed my dog and crashed on the couch crazy lightheaded, felt faint and disoriented. I’m sure it’s because I ran out of my OH med, it was hot and probably as much as I try dehydrated. Ended up in the hospital. Packed as usual. Managed to get an EKG which was good. Blood work. Didn’t stay and have to wait hours for treatment. I can look in My Chart to get results of blood tests . Some of the numbers were concerning especially for liver and… read more

May 21
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Answer Summary

Members connected with someone feeling overwhelmed by the overlapping challenges of orthostatic hypotension, fatigue, kidney concerns, and a... Read more

Members connected with someone feeling overwhelmed by the overlapping challenges of orthostatic hypotension, fatigue, kidney concerns, and a pending Parkinson's diagnosis, offering both empathy and practical coping ideas. Several members shared the frustration of severe fatigue and lightheadedness, with one suggesting starting tasks early on good days to get more done before energy runs out. A recurring theme was the importance of simplifying daily life, leaning on friends for help, starting a gratitude journal, and staying in close contact with both a PCP and neurologist, especially when managing mental health conditions alongside a neurological illness.

A MyParkinsonsTeam Member

Please stay focused on having a discussion with your PCP and neurologist I take meds for my bipolar and anti anxiety meds really help even though I have good and bad days always fear I’ll fall or faint while driving

May 25
A MyParkinsonsTeam Member

Roseanne, it's a lot I know. Hang in there do something good for yourself each day that brings you happiness. Be sure you let your friends drive and help. Take care of you to make this fun activities easier for you. Simplify simplify simplify your life! Start a gratitude journal & record 3 thibgs each day that bring you joy. This will help you see the goodness in your life!

May 24
A MyParkinsonsTeam Member

There's always something that helps me cope.

May 23
A MyParkinsonsTeam Member

Thanks Michael. I love.your.posts and there's atlways.something.

May 23
A MyParkinsonsTeam Member

I still get lightheaded. I know I need to hydrate more. That’s a biggie. Another conflicting thing with it is that I need salt. And because I have a risk of kidney stones , Im supposed to stay away from salt. What to do? I’m thinking I have anxiety worrying Im going to be lightheaded. And I get lightheaded! Just a theory. I’m taking 600 mg of the Northera. I didn’t realize you have so many things to deal with. So sorry. Kudos to you for staying positive. I always enjoy reading your narratives. So thought provoking and informative. I appreciate you ❤️‍🩹

May 22

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