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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 14
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A MyParkinsonsTeam Member

Be careful with the Benadryl. It can cause other issues. Always check with your doctor before taking any medications, either new or increased use of.

June 17
A MyParkinsonsTeam Member

Hi sweet Dawn! Yes, I do all the healthy sleep stuff. I did notice that my BP taken closer to sleep time has helped me the last 2 nights. Thank you, Jesus!

June 16
A MyParkinsonsTeam Member

Hey Lady 👋 this sounds horrible 😢 do you practice clean sleep routines? I only ask cause it's been a big topic in a lot of groups .... clean sleep routines mean: obviously nutrition issues, spicy caffenated and or heavy treats or drinks too close to bedtime; unplug the brain, no political social and or emotional content, especially on bright screens and fast paced music; scents, colors and relaxing vibes ... as for the pain; have you tried hot/cold therapy, any sleep aids? The all-over sickness, could it be allergies because benadryl would alleviate most of your issues ... and yes the pain, benadryl relieves a lot of painful inflammation type pains ... it is a mainstay for me on many levels!!! Oh and, if you're on sinemet ask your neurologist for extended release sinemet for night, it makes a world of difference!!! These are just my thoughts of course and I pray you find answers 🙏 (((HUGS)))

June 15
MyParkinsonsTeam

Dreading the night is exhausting in itself — and you're far from alone in this. Nighttime can be especially rough with Parkinson's, and there are actually several well-known reasons why symptoms tend to feel worse after dark.

Here are some common culprits worth exploring with your doctor:

- Medication wearing off — Show Full Answer

Dreading the night is exhausting in itself — and you're far from alone in this. Nighttime can be especially rough with Parkinson's, and there are actually several well-known reasons why symptoms tend to feel worse after dark.

Here are some common culprits worth exploring with your doctor:

- Medication wearing off — Parkinson's medications can lose effectiveness overnight, leaving motor symptoms and pain to creep back in
- Motor symptoms — Stiffness, cramping, or difficulty getting comfortable can make sleep feel impossible
- Restless Leg Syndrome (RLS) — A strong urge to move the legs when lying down, linked to low dopamine
- REM Sleep Behavior Disorder — Acting out dreams physically, which can be disruptive and unsettling
- Frequent nighttime urination (nocturia) — Affects up to 80% of people with Parkinson's and constantly breaks sleep
- Anxiety — Can spike at night and make everything feel more intense
- Sleep apnea — Interrupts deep sleep even when you don't realize it

The good news is that many of these have targeted treatments. Tracking when symptoms peak and what they feel like can really help your neurologist pinpoint the cause. Bringing a detailed description of your nights to your next appointment is a great starting point.

June 14
A MyParkinsonsTeam Member

Thank you for hug & I am hugging backLoveCindySent from my iPhone

June 18

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Tampa, FL