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Hello Have you ever experienced days or weeks that you didn’t experience symptoms& AND if so, did it come back worse?

A MyParkinsonsTeam Member asked a question 💭
July 10
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I'm sorry. I have been getting some help from my GI doctor. Dr. Khalid diagnosed me with Celiac disease. I haven't been as bloated since I have cut back on gluten which is found in wheat and barley. He also gave me a specific antibiotic which cleared an infection that apparently, I've had for decades! That's made a difference, as well. He's not done yet. I have a colonoscopy this coming Tuesday. I believe that he will not stop searching my insides until he discovers why my liver hurts so badly. I'm not symptom-free, but in between procedures, my symptoms have not been as severe.
I hope that is more on the order of what you were looking for, and I'm not telling you this to give you some kind of false hope. It is all true!
I'll be praying for you to have a little reprieve too.

July 11
MyParkinsonsTeam

That's a great question, and it's one many people with Parkinson's can relate to. Symptom variability is actually very common — some days can feel almost "normal," while others can be much harder.

Many MyParkinsonsTeam members have shared that their symptoms change day to day, sometimes even hour to hour. One Show Full Answer

That's a great question, and it's one many people with Parkinson's can relate to. Symptom variability is actually very common — some days can feel almost "normal," while others can be much harder.

Many MyParkinsonsTeam members have shared that their symptoms change day to day, sometimes even hour to hour. One MyParkinsonsTeam member put it well: "Every day is unpredictable as far as what symptoms I'll get and the intensity of them." These quieter periods are often celebrated! When one MyParkinsonsTeam member shared they'd had no difficult symptom episodes that day, others responded with joy — "Any day without 'off' time is a GREAT day!"

These better days don't necessarily mean symptoms will return worse afterward. However, Parkinson's symptoms can naturally fluctuate based on several factors, including:

- How well your medication is working
- Timing of doses
- Stress levels
- Sleep quality
- Physical activity If you notice patterns in your good and bad days, keeping a symptom diary — noting times, activities, and medication schedules — can be really helpful to share with your doctor. They may be able to adjust your treatment to help you have more of those better days.

Enjoy those good days fully — you've earned them! 😊

July 10
A MyParkinsonsTeam Member

I have partial days that I don’t notice my symptoms. But they always come back.

July 12
A MyParkinsonsTeam Member

I guess I was hoping that it was possible to look forward to little lapses in symptoms. Alas, I am wrong - sigh

July 10
A MyParkinsonsTeam Member

No, @CingyA2, I’ve never experienced a day without symptoms. In fact, I have experienced some symptoms since childhood.

July 10

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