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I would like advice from caretakers on how I can make things easier for my husband. He still works from home but those of us with Parkinson’s can be high maintenance. Day to day & hour to hour we don’t know how we are. I know he is tired but I rarely can do what I did & depend on him for almost every thing. I try not to complain but he sees that I can’t walk, get out of bed etc. So I try to be appreciative, try to help my self, talk to others etc. we were never able to have children, so he & I… read more
Answer Summary
Members responded with heartfelt support to a question about how to make life easier for a caregiving spouse while living with Parkinson's... Read more
I spend a good portion of my day doing research. With other maladies I prefer limiting myself to one source for each.
With Davis Phinney Foundation for Parkinson's I have found great info and discussions for both patient and caregiver. They can provide you with a free manual "Every Victory Counts" take a look at their site.
May each day be better than yesterday if only by an inch.
CindyA4 ,
Hello again , its kind of a balancing process for caretakers from other people who have to live or take care of their spouse with Parkinson disease . You know what you can and can't do , but everyone has different symptoms and problems doing certain tasks and that's what makes it tricky for anyone to give advice on how to care for a person with Parkinson's disease . All of us who have this disease can do is to keep our faith in God , pray 🙏 that he gives us strength to fight this disease not just for us , but for our caretakers as well ...🤍
As the sole caregiver for my husband who was diagnosed in 2011 The role of a caregiver is extremely hard and your wanting to know how to help your husband is fantastic!
I can tell you simply understanding that PD affects the both of you is a huge help
Showing your husband that you appreciate him, trying to help in any small way and keeping a positive attitude will go a long way
I wish you the very best as you navigate this horrible disease
My partner is not a caretaker. I walk (lol) that path alone but for doctors and digital friends. I think I'll disappear when I can't type, difficult some days.
Being there, listening and caring, is everything.🙂🌻
Suggest that he take some time to do things that he enjoys doing on his own. I go out for runs and short hikes, and my husband is fine with being alone for a while.
On days that you feel good, help where you can. Sometimes being solely responsible for everything can feel like too much. I'm fine with letting chores slide, but not everybody is.
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