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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Glen Burnie, MD
September 2
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A MyParkinsonsTeam Member

Thank you for the information.

September 3
A MyParkinsonsTeam Member

Welcome to the club!!! Many things to research and of course ask your movement disorder specialist neurologist about ... they can add some additional RX designed for fatigue and anxiety, B vitamins can help (I take mega doses of B1, B6 and B12 which help a lot and I gave in to anxiety depression meds, took several different tries but found wellbutrin helps)!! Many pain issues can be helped by these fatigue and anxiety therapies too ... of course not all but several!!
Sending good vibes and hope your neurologist finds an answer for you!!!

September 3 (edited)
MyParkinsonsTeam

Yes, both severe pain and exhaustion are very common with Parkinson's, and they can happen even with minimal effort. It's frustrating, but you're definitely not alone in experiencing this.

Fatigue affects up to 80% of people with Parkinson's at some point. It's not just ordinary tiredness — it can feel like a deep Show Full Answer

Yes, both severe pain and exhaustion are very common with Parkinson's, and they can happen even with minimal effort. It's frustrating, but you're definitely not alone in experiencing this.

Fatigue affects up to 80% of people with Parkinson's at some point. It's not just ordinary tiredness — it can feel like a deep, bone-level exhaustion that doesn't improve even after rest. A MyParkinsonsTeam member described it as: "Just tired, always tired, no matter how many hours I sleep or how much activity during the day." Pain is also very common, affecting around 60% of people with Parkinson's. It can show up in many forms, including:

- Muscle stiffness and joint pain
- Nerve pain (burning, tingling, or shooting sensations)
- Painful muscle spasms or cramps (dystonia)
- Sciatic pain running down the legs
- Neck and shoulder pain

These symptoms can range from mild to severe and may interfere with daily life. It's really important to talk to your neurologist or healthcare provider about both pain and fatigue. There are management options available, such as:

- Medication adjustments
- Physical therapy with a personalized exercise plan
- Treating sleep problems that worsen fatigue
- Mental health support, as depression can also contribute to exhaustion

Don't just push through it — these symptoms deserve proper attention and care.

September 2

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Milford, PA