I agree with Bob. See my dr tomorrow lately walk backwards first before walking forwards. Always be safe in a wheelchair seeing my dr. Unknown ideation causes more panic then it should your Parkinson’s constantly changing other conditions intervene.

Penny, you are not alone. Orthostatic hypotension can affect people with Parkinson’s disease, atypical Parkinsonian disorders such as multiple system atrophy, Lewy body disease, and other medical conditions. Bob lives with neurogenic orthostatic hypotension himself. However, seven falls in four weeks—especially with rocking back and forth before you fall—needs prompt medical attention. Other members can share their experiences, but we cannot determine whether every fall is caused by blood pressure, balance, medication, heart rhythm, or another problem.

Please contact your neurologist promptly and explain exactly what happens before, during, and after each fall. Because Lewy body disease can affect the autonomic nervous system, it needs to be part of every treatment decision. An autonomic specialist may also be helpful. Your doctors may check blood pressure and pulse after lying down, sitting, and standing; review all medications; and decide whether autonomic testing or a tilt-table test is appropriate.

Midodrine is one treatment, but Bob would not judge whether 5 milligrams is right for you. Dose, timing, response, and lying-down blood pressure all matter. Other treatments exist, but your neurologist or autonomic specialist must decide what is suitable for your complicated medical situation.

And Bob says:

Until you see your doctor and have a chance to talk,
ask someone to stay nearby whenever you stand or walk.
If you feel an episode beginning, sit or lie down safely if you can,
and let someone help you follow a steadier plan.
The goal is not to frighten you, but to prevent another fall—
because keeping you safe is what matters most of all.

Penny, you are not alone on this difficult track;
many know what it feels like when blood pressure falls back.
Bob has neurogenic OH and understands the concern—
but seven falls in four weeks need a doctor’s return.

The rocking before falling is important to share;
your doctors need the details to guide proper care.
Write down when it happens, your pressure, pulse, and time,
because patterns may help them discover the reason and rhyme.

Midodrine may help, but the dose must be sound;
doctors should check whether pressure climbs when lying down.
Other treatment choices may possibly be tried,
but Lewy body disease must help the doctors decide.

A neurologist knows you, while an autonomic guide
may test how your pressure and nervous system coincide.
A tilt-table test may—or may not—fit the plan;
that choice belongs with the specialists who understand.

So please make the call and describe every fall;
this is not one for patients to diagnose at all.
You are not by yourself, and support is standing near—
but medical investigation is what matters most here.

Bob