accepting the challenges of constant change and Parkinson's disease | MyParkinsonsTeam

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I Have Pretty Much Lost My Appetite And Am Not Eating Healthy Or Enough. Any Suggestions. Am Losing A Lot Of Weight.
A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

If medical Marijuana is legle in your area, ask for the munchies bud. You will be eating. Now if you use oxigen or something. Then you need to stipulate. Good luck Aug 6th.

Azilect
A MyParkinsonsTeam Member asked a question 💭

If anyone is paying an outrages price for Azilect (I was paying $375 for three months), I just refilled mine and the generic brand is now available in the USA. I paid $25.00 for a three month supply of Rasagiline (this is the generic brand.) About time!!!!

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A MyParkinsonsTeam Member

That med is one Bill no longer takes. I think he had hallucinations while on it!

Bourning Mouth And Tounge
A MyParkinsonsTeam Member asked a question 💭

I have burning mouth and tounge problem. this is my 16 year of Parkinsons. does anyone know if this is Parkinsons problem or something else?

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A MyParkinsonsTeam Member

I have the exact same problem, looks like I need to get some B12. Sometimes my tongue is so dry and stuck to roof of my mouth in the middle of the night that it scares me. Thanks for the tip!

Changes In Parkinson’s Med.
A MyParkinsonsTeam Member asked a question 💭

I just today met with my neurologist and he has increased my carbidopa/levodopa to for times a day, will see what happens?

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A MyParkinsonsTeam Member

I take carbi-Levo 25/100 11 times a day. Bean

Ent For Parkinson’s
A MyParkinsonsTeam Member asked a question 💭

What medical professional do you go to for swallowing problems that are related to PD?

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A MyParkinsonsTeam Member

My Dad had this problem for several years until finally all his drinks had to be thickened... even his whisky before dinner! :)

Has Anyone Noticed The New Banner Or Option On The Notification Screen That Indicates A Challenge?
A MyParkinsonsTeam Member asked a question 💭

It's been there for a few days now but point as I might to every part of it, it doesn't seem to be active. I hope we can use it soon. Perhaps the Community Leaders could tell us more about it. I have so many ideas for challenges I've given myself that I would love to share with you and I'd love to participate in challenges posted by others
Hope this function becomes active soon. See you at the races!

Until it is functional, how about a little bitty challenge just among friends-
While sitting… read more

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A MyParkinsonsTeam Member

Try doing it to music - much more fun!

Has Anyone Tried Cannabis Oil For Parkinson Pain.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I do not know about CBD oil but a small poke on my pipe helps me relax in the evenings

I Have A Great Deal Of Trouble Urinating. I Have Been Diagnosed With Parkinson's 14 Months Ago.
A MyParkinsonsTeam Member asked a question 💭

My urinating problems have been going on for several years...I have been thoroughly checked out by a Urologist and found nothing wrong. It was after that, that I was diagnosed with Parkinson's; Does anyone else have these problems?

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A MyParkinsonsTeam Member

My husband also has urination problems. Our Neurologist says it's just part of PD.

I Have A Cold Right Now With A Cough I Can't Get Rid Of Anyone Else Have A Hard Time Getting Over Simple Colds While Having Parkinson's?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I'm usually really healthy....I only get life changing stuff, you know the kind, Epilepsy, Parkinson's, that kinda stuff. I don't usually don't get colds. I'm a constant hand washer....however...I… read more

Thoughts On Clozapine
A MyParkinsonsTeam Member asked a question 💭

Thoughts on clozapine for constant hallucinations. Nuplazid for 10 weeks and Exelon patch for 8 weeks with no change. This is doctor's next step. Thanks.

A MyParkinsonsTeam Member

Stick with Nuplazid