I find myself snapping at my spouse much too often. It was worse at the beginning & I am slowly finding ways to deal with those issues. Hopefully I will find more strength to help him as the disease progresses.
There are caregiver support groups offered by Senior centers. Maybe you can find a Parkinson’s support group, too. Make sure you find time and space to do something for yourself. If your well runs dry… read more
Now trying carbidopa levodopa 100 mg three times a day. I do occasionally get tired after taking my meds but that’s usually what I don’t work out.
As mobility decreases what are your plans
My uncle had Parkinson's but did not want to live without his wife. They hired a caregiver who worked with them 5 days a week 9-5 another cared for them on weekends. She helped with shopping and… read more
Think about sending some love and a moment of joy out into the world. You might be amazed by what you get back.
You are welcome to my joy and love today. I know where to find more.
Maria
I did, but he is gone now. I carry his encouragement and eternal Love & Faith with me everyday: keeps me alive!
Blessings to All!
Also here:
https://dysphagiamatters.org/ep-23-emst-and-smt...
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When I was laid up in agony for two years following a fall in which one of my vertebra moved and my spinal chord was then pinched my hubby had to do everything and he had to learn to cook as well.
Hi, there have been many instances of spouses and parent/child and siblings reporting that both end up with Parkinson's. Seems like a lot of people on here have this kind of experience and I am just wondering, can these cases be environmental? Wondering also, as caregivers continue on, the caregiver's physical mobility starts to decline because he/she stays home to take care of the PD person, so maybe the lack of activity contributes to the second person getting Parkinson's? It's just a glaring… read more
I concur with the others here that have mentioned the possibility of the couple being exposed to the same environmental triggers that would cause the disease in both of them 😞🥲🧐
Thats why my husband is always sleepy after taking his pills 3 times a day. But again he seems to doze off and on other times.
Try spacing it out. I find too much makes me immediately sleepy.
My husband has Parkinson’s and I am finding life really difficulty. He has changed a great deal and obviously is less capable in doing things. What I find exasperating is his slowness and attitude. He doesn’t sleep well and my sleep has and is interrupted every night to the point where I am so brain and body tired that I cannot think straight. I am so exhausted. They sleep is so important for one’s health but I am not getting enough and feel as though I am on the brink of ?????. There is a… read more
Separate rooms helped a lot because between the two of us getting up at different times, no one got any sleep! Also, I am the one who snores really badly. We have had separate rooms for over 5 years… read more