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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Used BLACK SEED OIL As A Suppliment?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I haven’t heard of it but reading about it. Very interested in learning more rearchitect etc

How To Get Rid Of Nerve Pain? See Details Below.

A MyParkinsonsTeam Member asked a question 💭

How do you get rid of nerve pain in mid Forehead to temple from shingles? No blisters for 4 months.Pain is excruciating. Thank you Does anyone know how long this lasts?

A MyParkinsonsTeam Member

To manage nerve pain associated with Parkinson's disease, consider the following options from the knowledge base:

- Medications
- Gabapentin: Effective for nerve pain in various body parts,… read more

When Having DBS Surgery, Did Anyone Have To Shave Their Entire Head? How Did You Cope If You Did? My Hair Is Important To Me Lol

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

My Dad with Parkinson’s had DBS several years ago and they didn’t shave any hair what so ever.

Who The Hell Thought This Would Be A Good Idea?

A MyParkinsonsTeam Member asked a question 💭

Well, the EU of course. I thought it was just some stupid test, but no. By EU decree, all plastic bottles must now be attached to their lids so that they can be recycled together. Did anyone even think to ask any disabled groups whether this might make it harder for them to take the lid off their pop?

Worse still I always used to attach my lids to the pop bottle anyway. Where the hell else would you put it?

A MyParkinsonsTeam Member

I could write an epistle on the current state of affairs 😱
My personal favorite was a tag hanging off a purse that actually said Vegan material. 👀🤦‍♀️ I'm assuming that my grass eating cow was not… read more

Cats Xx

A MyParkinsonsTeam Member asked a question 💭

https://m.facebook.com/#!/photo.php?fbid(Phone number can only be seen by MyParkinsonsTeam users)&id(Phone number can only be seen by MyParkinsonsTeam users)&set=gm(Phone number can only be seen by MyParkinsonsTeam users)&source=48&refid=8&_ft_=qid.6458233952678971847%3Amf_story_key.-5117456107147004832%3Atop_level_post_id(Phone number can only be seen by MyParkinsonsTeam users)&__tn__=EH-R

A MyParkinsonsTeam Member

Sorry not authorized to visit Facebook.

No Driving

A MyParkinsonsTeam Member asked a question 💭

My husband was told twice by his neurologist not to drive. Caretakers! How did you deal with this part? He keeps driving so I hid keys but he got a chain from barn and threatened to tear up my van if I didn't give them to him.

A MyParkinsonsTeam Member

His doctor started him on Donepezil but he got diarrhea so he won't even try it again. I keep telling him he should because it could have been a virus. I'm going to show him your post and maybe he'll… read more

How Did You Get Diagnosed With Parkinson’s?

A MyParkinsonsTeam Member asked a question 💭

Did you do the circle test, hand writing test, tapping your fingers together test?
Did you pass any of them?

A MyParkinsonsTeam Member

The first test that he had me do is the handwriting test. My writing was so small that it was nearly impossible to figure out what I wrote. No matter how much I tried to force myself to write larger… read more

How Do You Get Rid Of Ringing In The Ears?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Ginkgo biloba

Has Anyone Heard Of Focused Ultrsound For Tremor- Dominant Parkinson Disease? If So Did You Have This Procedure Done And Did It Help You?

A MyParkinsonsTeam Member asked a question 💭

How Did You Feel When You Was First Diagnosed?

A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I was diagnosed in Jan 2024. There is lots of info out there. You can learn a lot from this site. The one thing that books can't teach, is how to live with it. That you can get right here!! I've had… read more