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How Do I Keep The Frustration Out Of My Voice, When Talking Loudly When Aunt Cannot Hear/understand Me?
A MyParkinsonsTeam Member asked a question 💭

Aunt's hearing aides no longer help and she does not want to spend the money to get new ones. I am frequently raising my voice so she can hear me and then she complains that I yell at her. I know I get frustrated some times and do not want her to feel bad...

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A MyParkinsonsTeam Member

I tell them in a softer voice to get hearing aids and then show them mine!

I Just Went Through An A Assessment On What Stage Of Parkinson I Have I'm A 2 1/2 Out Of 5 Have You Had One
A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

Just check you over balance strength eyes and walking and standing

What If The Current Best Treatment For Breast Cancer Was Nearly 60 Years Old And Only Made You More Comfortable For A Few Years.
A MyParkinsonsTeam Member asked a question 💭

Would cancer patients be as accepting as we are today?

A MyParkinsonsTeam Member

Just me moaning Frank, best to ignore me when I get like this...😀

Does Anyone Suffer With Light Head, Fear Of Falling And Dizzyness?
A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

My mother is often dizzy or unsteady. She has thankfully only fallen once. PT helped her some. The physical therapists showed her exercises to improve her balance. She is learning to stop and wait a… read more

Some Folks Have Talked About Getting Info About Brain Donation? Are You One Of Them?
A MyParkinsonsTeam Member asked a question 💭

If info about brain donation upsets you, please close this communication
The following info was extracted from a research paper published by The Parkinson's Foundation;.
There is a great shortage of brain tissue for studying neurodegenerative disorders such as PD and is needed for research including treatment and medication that can lead to better outcomes.

Where do you start
- It is never easy to decide to donate organs from you or a loved one but the sooner you talk to your family about… read more

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A MyParkinsonsTeam Member

I agree Greg. Don't forget the emotions and conflict mixed in to the thinking and decisions. That is why I wanted to set everything up while my brain is kinda working and not pile it on with all of… read more

Help Needed. How Do Spouses Know When To Put A PD Spouse Into Nursing Facility
A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member - what a beautiful and well thought out answer.

Deep Brain Stimulation (DBS)
A MyParkinsonsTeam Member asked a question 💭

what is the rate of sucess for this surgey

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A MyParkinsonsTeam Member

Don,t think about it anymore, just do it.

Did You Have Symptoms That Were Noticed And Eventually Led To Your Diagnosis Of PD? Were They Primarily Motor Symptoms? #2
A MyParkinsonsTeam Member asked a question 💭

Based upon the MJFF 360 document, You might be interested to know that the presentation of a resting tremor, rigidity and/or bradykinesia on one side of the body are the most common symptoms that gets health professionals thinking about a diagnosis of PD.

Is this true for you?

Until the biomarker being researched now, a PD diagnosis is based on the person's medical history and physical exam. The exam is done primarily to rule out other conditions that can look like PD. A DaTscan can't… read more

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A MyParkinsonsTeam Member

Hi Jane, I had to retire sooner than I planned because the brain fog I was experiencing became noticeable to those around me and being in health care, I couldn't put patients at risk. Life has worked… read more

How Many People With PD Also Have Family Members With PD?
A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

Nope, nobody

What To Do For Horrible Depression?
A MyParkinsonsTeam Member asked a question 💭

I can’t motivate myself to do the things I should be doing! I am not interested in luch, feel left out and out of touch! My husband is becoming depressed and angry. Its really a tough situation!

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A MyParkinsonsTeam Member

I have taken antidepressants for years, bt I have a lot of great friends who really understand me and it helps to talk to them, they get me, my husband? Not so much, at least my friends "hear" me… read more