what are you thankful for and Parkinson's disease | MyParkinsonsTeam

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I Have Developed Droop Neck I Do Neck Exercise But Little Improvement I Have Very Short Walking Distance. I Am 77 And Have 13 Years Diagnos
A MyParkinsonsTeam Member asked a question 💭

Has anyone found neck or back supports helpful

A MyParkinsonsTeam Member

After seeing this picture, I'm thinking of buying a neck pillow (type you use on an airplane) for my hubby.

Extreme Paranoia As Side Effect Of Carbidopa?
A MyParkinsonsTeam Member asked a question 💭

Newbie here. At a loss of how I can help my family. My father has been on Sinemet for months-- taking the pills makes life "kind of" worth living again, but the negative side effects are beginning to take a toll. He is very paranoid and jealous, accusing his spouse of cheating. It's becoming so difficult for her, who does nothing but love him and take care of him at the expense of her own mental health. She tries to explain to him that this is a side effect of the medication, but he does not… read more

A MyParkinsonsTeam Member

I have not encountered any problem. I take 2ea four times daily and four hours apart..

Has Anyone Had A Rash Taking Azilect
A MyParkinsonsTeam Member asked a question 💭

1large red place size of egg and more size of a dime

A MyParkinsonsTeam Member

I have not taken this med yet. What is it for?

Are There More Members On Here That Are Spouses Of The Ones With Parkinson’s? If So, How Are They With Their Symptoms?
A MyParkinsonsTeam Member asked a question 💭

Like my husband’s symptoms are mild still, thankfully. He takes medication that controls his shaking/tremors, but when he gets stressed he will still shake some. He’s 62.

A MyParkinsonsTeam Member

I find that when I get nervous the tremors come out more. It is usually when I am talking to a Dr. Or watching the end of a car race.lol

Anyone Have Muscle Pain That Parkinsons Ned’s Do Not Help?
A MyParkinsonsTeam Member asked a question 💭

Have been diagnosed with Parkinson’s 4 years ago. Doing great on low doses of Sinemet and Mirapex. About a year ago developed muscle pain which is worse in the morning (mostly on the left side buttocks and low back). Increasing med’s did not help. I keep exercising but some days the muscle pain is so bad I do not want to exercise. I have tried everything from exercise, stretching, Tylenol, topical analgesics, trigger point therapy, massage, tens unit etc. Nothing seems to help. I believe it is… read more

A MyParkinsonsTeam Member

Where can I meet this Parkinson’s Ned?

Hello Pepper Heads. What Gives ?
A MyParkinsonsTeam Member asked a question 💭

How do I know it's a new year ? I'm sitting in the same chair looking out the same window, looks the same to me. Same _ _ _ _ on TV, same sandwich for lunch ( not THE same sandwich ) same people in my life, thankfully. We celebrated the new year but what does it mean ? Are we just celebrating another year has gone and we didn't manage to blow ourselves to smithereens by the grace of God ? Given the course the world is taking, what specifically should we do with another new year?

A MyParkinsonsTeam Member

You can never explain what you are going through to someone who hasn’t experienced it. What I have said many times about this disease is “you just don’t get it, until you get it”

Looking For A Comfortable Bed. Any Suggestions?
A MyParkinsonsTeam Member asked a question 💭

My husband has a hard time getting comfortable in bed consequently he doesn't sleep well. Does anybody have a good suggestion for a mattress/bed? We're hoping a different matress might help.

A MyParkinsonsTeam Member

My wife and I have more than one home and we share a sleep number California king in each of them. Yes they're expensive, but well worth the money.

To All Who Have Had DBS, Are You Happy With The Battery Choice?
A MyParkinsonsTeam Member asked a question 💭

Some people feel that the double battery is uncomfortable and the thinner rechargeable is better. What do you feel? Also has anyone had their stimulator put in your stomach area, not your chest? I am too thin for the chest area so my doctor suggested stomach area. Bean

A MyParkinsonsTeam Member

thanks
graham 2

Most Frustrating Is Not Knowing When Parkinson’s Will Keep Me From Activities And Friends.
A MyParkinsonsTeam Member asked a question 💭

Major problem is sudden exhaustion.

A MyParkinsonsTeam Member

I’m thankful to read responses speaking of having to cancel engagements due to fatigue. I was beginning to think I was getting lazy or antisocial.

Drug Cost After Medicare
A MyParkinsonsTeam Member asked a question 💭

Are there any resources for medication prices after 65 and on Medicare? We have a drug plan, but Gocoveri & Rytary are brutal costwise . I have looked at the Good Rx in addition & to reaching out to the company of each drug. I am afraid, I am learning that if you are on a government program ( Medicare ) the company's help in copay is not allowed. Crazy.. Any leads for me to help with reducing an extremely high drug cost monthly.. Lyn

A MyParkinsonsTeam Member

Finally, and thankfully, the Medical University has something like a PAN Foundation and helped us /him with Rylary and Gocovri . We were very thankful. It would behoove anyone to look in the… read more