Of course! It is, after all, major surgery with major risks. It requires a lot of faith in your neurosurgeon. Having my head screwed into a metal cage to immobilize it during surgery was probably the worst because I remember that - vaguely - but I do remember it. My entire head was shaved during each surgery. I've gained about 35 pounds since the surgery (I'm not vomiting several times a day as I was when I took a larger dose of Sinemet). My neurostimulator is not rechargeable and will have to be replaced at some point. All things have pros and cons, but for me the pros outweigh the cons.

H Carolyn, I had the same problems as you. The DBS did not cure my dyskensia which is bad. I had mine done in 2019. I dont know if you have the medtronics brain sense unit but I am having my battery changed to this one in september. My doctor thought this would help me and it is worth a try. It is when your body needs more stimulation, the unit knows to give you more. You dont have to rely on the doctor programing it every couple of months. Take a look into it. It is called the Medtronics Adaptive Precept Brain Sense unit. Bean

I had my DBS Surgery in October 2025. The improvements have been marginal. I’ve noticed some improvement in my sense of smell and taste, but not in the main areas that matter to me, such as dyskinesia, coordination, and dexterity. Granted, I haven’t had tremors (at least, not yet), and from what I’ve heard, tremor is one of the symptoms that tends to respond best to DBS. All in all, though, I have to say that, for me, the results have been disappointing.

In the making, trying everything else first, on 4 Parcopa 4 times a day

@A MyParkinsonsTeam Member, yes thank you for that great information, it helps a lot.

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