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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My legs feel like a steam roller is sitting on them

March 7
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A MyParkinsonsTeam Member

Consider describing your symptoms to your neurologist. ( I usually type my observations, concerns, and questions for the doctor, and he seems appreciative. I include my medication schedule so that he stays focused and has everything at hand.)

You might first determine if
you stay sufficiently hydrated throughout the whole day. Also, a banana a day may keep “Dr, Neuro” away.

Years ago right before bedtime I would begin to feel as if I were about to crawl out of my skin. While not painful, the sensation was intensely uncomfortable. I have been taking 1 mg of ropinirole (Requip) for 20 +\- years.. This minimal strength dose continues to be effective and economical—a rarity in the Parkie world.

March 11
A MyParkinsonsTeam Member

I have the same problem but I don’t exercise yet. I take Ropinarole and muscle relaxers. They sometimes help.

March 7
MyParkinsonsTeam

What causes painful leg muscle tightness and involuntary flexing in Parkinson's?

The painful muscle tightness and involuntary flexing you're experiencing could be dystonia, which is common in Parkinson's. Dystonia causes excessive, involuntary muscle contractions that can be continuous or repetitive, affecting various body Show Full Answer

What causes painful leg muscle tightness and involuntary flexing in Parkinson's?

The painful muscle tightness and involuntary flexing you're experiencing could be dystonia, which is common in Parkinson's. Dystonia causes excessive, involuntary muscle contractions that can be continuous or repetitive, affecting various body parts including the legs and feet.

Symptoms can include:
- Severe twisting movements
- Painful spasms
- Clenched toes or cramped feet
- Muscle contractions that occur even when you're not moving

You might notice dystonia when trying to walk, like toes curling up or your foot turning in. It can also happen when you're at rest, which might explain why your legs feel like a steam roller is sitting on them. Not everyone with Parkinson's experiences this symptom to the same degree. A MyParkinsonsTeam member described similar experiences, saying "My toes curl up when I am 'off'" during medication wear-off periods.

Since you're exercising daily and still experiencing severe pain, it's important to discuss this with your doctor. While exercise is beneficial, these specific symptoms may need medication adjustments or other treatment approaches. The intensity you're describing - feeling like a steam roller is on your legs - suggests this needs medical attention to find relief.

March 7
A MyParkinsonsTeam Member

Have y'all checked this might be Restless Leg Syndrome. I take Ropinirole ER 2mg and I would walk over hot coals to make sure I don't run out of them!!

March 7
A MyParkinsonsTeam Member

That's pretty much the same for my legs too, @A MyParkinsonsTeam Member, but for me, the pain started when I was 30; se 36 years ago. It just gets worse.

March 7

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