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Neurologist decreased dosage and now has discontinued it entirely as of yesterday. Wants him to consider using Neupro patches. His PD symptoms have mainly been muscle stiffness/rigidity, forward neck/head/posture issues, some leg/toe cramping, constipation and poor sleep prior to starting Sinemet, but the current insomnia has been awful with bad restless legs. He has been extremely tired with periods of nodding off instantly. Has anyone tried the patches and what were the results? He is… read more

June 23
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A MyParkinsonsTeam Member

The patches were expensive, so after a short trial with free samples, my husband stopped using them. You have to be careful to put the patches in a different area every day so you don't irritate the skin. That is something that has stopped some people here on the forum from using Neupro long term. It's worth trying though, if your doctor thinks they're appropriate.

June 23 (edited)
A MyParkinsonsTeam Member

My PCP care Dr put me on sleeping pills. That helped

June 23
MyParkinsonsTeam

What a tough few weeks it sounds like — navigating medication changes while dealing with severe sleep deprivation is genuinely exhausting, for both of you.

The Neupro (rotigotine) patch works differently from Sinemet. Instead of doses that rise and fall throughout the day, it delivers medication steadily through the skin Show Full Answer

What a tough few weeks it sounds like — navigating medication changes while dealing with severe sleep deprivation is genuinely exhausting, for both of you.

The Neupro (rotigotine) patch works differently from Sinemet. Instead of doses that rise and fall throughout the day, it delivers medication steadily through the skin over 24 hours. This more consistent delivery can be gentler on the system and may help avoid some of the peaks and valleys that can trigger restless legs and fragmented sleep.

Some MyParkinsonsTeam members have had positive experiences with the patch specifically for restless legs, with one sharing simply: "Does the job and stops RLS." It's worth knowing that restless legs syndrome (RLS) is thought to be linked to dopamine levels — the same chemical affected by Parkinson's — so treating PD symptoms may also help address the RLS directly.

A few things that may also help his sleep alongside the new medication:

- Consistent medication timing — taking the last dose at a regular evening time has helped some members sleep through to midnight or later
- Sleep hygiene habits — dimming lights in the evening, avoiding caffeine later in the day, and winding down before bed
- Talking to his neurologist about whether a short-term sleep aid or melatonin might bridge the gap while his body adjusts

The nodding off during the day is a real concern too — sleep deprivation compounds everything with Parkinson's. It's absolutely worth raising that specifically with his neurologist so they can monitor it closely during this transition.

June 23

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