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Suffer severe fatigue

September 13
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Answer Summary

Members responded with deep empathy to a question about severe fatigue with Parkinson's, with many sharing that extreme tiredness is a daily... Read more

Members responded with deep empathy to a question about severe fatigue with Parkinson's, with many sharing that extreme tiredness is a daily reality that affects their ability to complete even simple tasks. Several members shared helpful strategies including scheduling a daily midday nap of at least one hour, taking vitamin B12 in the morning, avoiding the urge to fight fatigue and instead embracing rest, and leaning on routines to pace energy throughout the day. A recurring theme was the comfort found in knowing others understand the struggle, along with encouragement to also work with a doctor to explore treatable causes like medication side effects or vitamin deficiencies.

A MyParkinsonsTeam Member

I started taking vitamin B12 when I wake in the morning and have energy most of the day

September 14
A MyParkinsonsTeam Member

I’m going to ask my dr to test my b12 in my next blood workup

September 15
A MyParkinsonsTeam Member

I suffered from this for quite a while and finally found a Parkinson's article. A rest or nap without sleep does not help.
The comment was our body needs to recharge and at least a 1 hour sleep nap midday does this more effectively. Depending on my day I will sleep for one hour between 2 and 4 pm.
I was amazed when the body would let me sleep as truly needed. The vast majority of days it is 1hour 15 minutes, but there are longer naps as the body needs it sometimes as long as 3 hours.
This did not solve it after one day, Slowly changing my daily pattern to include a one hour nap after two weeks I noticed a change. My body decided how much sleep I needed not I. The naps no longer were everyday one hour but ranged from from 1 to 3 hours. The body decided what it needed.

Yes I had to darken the room, put soft music on and sleep on top of the covers.

Good luck to all and may today be better than yesterday if only by an inch.

September 16
A MyParkinsonsTeam Member

Yes I have EXTREME fatigue also. There is not much I can do for it. It happens in the middle of the day around 3 pm lasts until about 5 pm so I just lie on the couch, kick my shoes off and watch a good Netflix movie and then I get up, start my dinner and I am good to go. Why fight it? I tried to do that many a times without success. So now I embrace my relaxing time. Bean

September 17
A MyParkinsonsTeam Member

I get b12 shots monthly always low. See dr every 30 days have lab work. Amazing what they find with it. Diabetes etc it’s u against u fight to stay healthy and safe. Low b12 is not good

September 16

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