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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is anyone taking B12? I might of misunderstood the neurologist and appointment is not until the end of November.

A MyParkinsonsTeam Member asked a question 💭
Philadelphia, PA
September 17
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A MyParkinsonsTeam Member

Always use proper medical advice world full of bad advice. This is not a medical web site. I see dr every thirty days and have lab work. Group chats r supportive but not medically accurate everyone Parkinson’s disease different treatment different too. Always wait for lab results and speak to your dr.

September 28
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Your doctor probably through which you should be be able to access your records. Someone at the office should be able to help log into the website; if not, someone, probably a nurse can look at your records and tell you what was recommended.

September 27
A MyParkinsonsTeam Member

So I should wait for blood test results and wait to see my neurologist thank you for responding

September 28
A MyParkinsonsTeam Member

My husband was tested for B6 and B12 deficiency. He was fine for the first, low on the second so we have been supplementing it.

September 28
MyParkinsonsTeam

It's great that you're thinking ahead while waiting for your next appointment! Vitamin B12 does come up quite a bit in conversations among MyParkinsonsTeam members, so you're not alone in wondering about it.

Vitamin B12 is thought to play a role in both motor and non-motor symptoms of Parkinson's. It supports a chemical Show Full Answer

It's great that you're thinking ahead while waiting for your next appointment! Vitamin B12 does come up quite a bit in conversations among MyParkinsonsTeam members, so you're not alone in wondering about it.

Vitamin B12 is thought to play a role in both motor and non-motor symptoms of Parkinson's. It supports a chemical called acetylcholine, which affects both physical movement and cognitive function. Some researchers believe that low B12 levels may worsen certain symptoms. If you're taking carbidopa/levodopa, there's also a related vitamin worth knowing about — B6. The FDA recently added a warning that carbidopa/levodopa can lower B6 levels over time, particularly at higher doses. Signs of low B6 can include:

- Numbness or tingling
- Muscle weakness
- Fatigue
- Mood changes or confusion

This doesn't mean stopping medication — it just means it's worth discussing with your neurologist. Since your appointment isn't until late November, it might be worth calling the office to clarify what your neurologist recommended about B12 — or to ask if your B6 levels should be checked too. It's always best to confirm before starting any supplement, as levels and needs vary from person to person.

September 17

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