I just stay injured from pulling and lifting my 222lb husband in and out if bed and chairs--shoulders, back, hip, wrists, etc. I hurt all the time. Do any of you have that problem?
I have three bulging discs. I try to be careful every time I help him getting out of the bed, chairs or any other time. I tell him I have limits and he must help as much as possible. Gait belts help a lot. If you have an opportunity to see a physical therapist, ask them for proper techniques in moving him. They will show you how to lift with proper posturing.
Medicare paid for a trapeze that goes above my husband lying down. He can grab it to shift in bed. We also purchased a floor to ceiling pole that my husband uses to grab to help pull himself out of bed. One of the best items we have is called a Sara Stedy. It may also be called a Sit and Stand. My husband will step on the base. The seat will come around him so he will sit. I can then move him to a location. I think Medicare will pay for this too with a prescription.
When I use my hands to help him up, I have him grab my wrists and I have his wrists. This is a stronger position.
We have a transfer disc, similar to a lazy susan, that he stands on. I then place my foot in the center of the disc and turn him in the direction he needs to be. He can walk off and to location at that point.
Hope some of this may help you.
A hoist wasn't necessary for us when my husband had difficulty getting out of bed and chairs. My son and grandson made something to help. I don't have a name for it but I can describe it and take a picture to post because after my husband died, I kept it for me. I have problems getting out of bed but not my chair because I bought lift chairs for both of us. To make the "help to get out of chairs and beds device".
My son screwed a LARGE eye bolt in the ceiling next to our bed and another next to my husband's favorite chair. My grandson had gone to the attic to find a stud up there. The eye bolt needed to be screwed into that Faso it doesn't pull through the ceiling. They did not use glue but my son said it could have been applied in the attic around the stud if he had needed to attach a second stud. He didn't need that. By the way, my son has a Sheetrock installation business so he knew what he was doing. My dad was a builder and I frequently helped him so I knew too! We bought some of the heavy roping ( it's frequently plaited--- looks like plastic and I think people who water ski use it). And put it through the eye of the bolt so it hung down toward the floor. We had extra length so it could be plaited for extra strength and security. Then my son tied knots in the rope several times leaving space between the knots so both hands could grab it. The knots keeps hands from slipping off. My husband could even lie on the couch and pull up. Because the stud in the bedroom ceiling wasn't as close to the bedside, we kept one of the "grabbers" on a bedside table. It could be used if needed to grab the rope but I was usually there when he got out of bed. I'll Post a picture and draw a sketch/plans and post later today. Our rope devices cost less than $30.00. A hoist for just one place costs over $200.00 ( all we found, there be some less expensive but we didn't find and when you need something like this, you don't usually have extra shopping time!).
I believe I commented on this already but I want to add a P. S.
it was difficult for me to lift/help my husband stand and several times we both landed on the floor with extreme problems getting back up. Once he landed over me half way and we couldn't get up without help. It was late afternoon and our children and grandchildren had already been by to visit. I was beginning to think we might be spending the night on the floor. I didn't have my emergency medical button at that time. The floor was not soft either! The front wooden door was open and God sent an angel to that front door. He knocked and I yelled help as loudl as I could. When he looked inside he came in and helped us up. I couldn't believe it when he told us he was a friend of our son and his name! He was Reverand Goodman. I He sure did fit his name. I told him how blessed we were to have him come by and I would never forget him. I haven't yet and don't think I will! But what I want to emphasize now is that no matter if we fall, even if no one comes soon to help, no matter what happens because of your or your spouse's health situation, keep in mind that tears are ok but cry a short time and the rest of the time--- smile and laugh. Crying gives me headaches; laughter and smiles might make my mouth stretch but they are the best cure. It was very hard for me to cope with his cancer and beginning stage of PD and my own PD but if I had to do it again, I WOULD. my back aches and so do my hips but the love we shared makes it bearable even now that I'm alone. I know that in Heaven we will meet again.
@A MyParkinsonsTeam Member, I am so sorry you are having such problems. It seems that maybe he has experienced a personality change and you are dealing with someone you do not know. Tell your neurologist this story. Most doctors are as concerned with the caregiver as they are the patient. Maybe he can give him a little something to calm him and make him easier to manage. My doctor gave my husband Escitalopram (Lexapro) early on when he complained of depression, anxiety, aggressive feelings, and irritability. It relieved all that and he is usually sweet and calm even when he is confused. Sometimes I go along with him if he thinks he's elsewhere or with someone else, but sometimes I try to bring him back to reality. He asked me the other day what time he had to be at work (He's been retired since '98). I didn't answer. He then said he thought he would call in sick. I asked him if he wanted me to call in for him and he did. He smiled and said, "I am so relieved," then went to sleep. If your husband does try to get you in trouble, or becomes violent, you will have to place him in the hands of someone else. So hard to do. I woke up at three and checked on my husband and his hand was cold. I tucked it under the covers and got another blanket for him. I realized that no where else would someone do that for him. I cannot tell you what to do, but definitely start with your doctor. Just know that we are here for you. Write us anytime you need us. I usually go here once a day and messages come up on my iPhone, but if I do not respond, someone else will.
@A MyParkinsonsTeam Member A friend who had lost his wife last summer had his hospice chaplain come to see me. I have a nurse come once a week and an aide come 5 days and bathe or shower or shave. She puts him to bed. By far, the best help I have had. Check with your local hospice and ask for a visit. Parkinson's patients do not have to be terminal to get help. They do things their way, though, so may not agree with your doctor. Or your doctor may not think it is necessary. My husband is 83 almost and has other issues as well.