My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?

My husbands hallucinations are increasing and Neurologist recommends Nuplazid. Would appreciate any input.

PNT wrote
Hallucinations occur when a person sees, hears, feels, smells, or tastes something that doesn’t exist. Hallucinations happen when a person is awake — they are not dreams. People may be aware that they are experiencing a hallucination while it’s happening or realize it shortly after. This is called “retaining insight.”

Losing insight — failing to realize something is a hallucination — can cause agitation and can also lead to falls or other accidents.

2. Delusions Involve False… read more

Seeing ghosts. He has never been this bad. Do I call his doctor?

What med works for the hallucination/delusions? He's trying SeroQuel but that has made it much worse.

There's a new Pharma Ad on TV that focuses on Parkinson's patients with dementia and delusional thinking . Personally, I would rather have seen the focus be on symptoms that are more widespread, yet hidden from the average eye. I think the portrayal of Parkinson's causing hallucinations runs the risk of stigmatizing many of us. I think more widespread "silent" symptoms such as pain, social withdrawal, overall slowness (with movement and thinking) would be more accurate portrayals of what we… read more

Approximately 3 months ago, I experienced severe hallucinations hypothesized to be associated with an urinary tract infection, I had a second less pronounced episode of hallucinations about 6 weeks ago, also associated with a UTI. My neurologist prescribed Nuplazid, the only medication approved for the prevention and treatment of Parkinson's related hallucinations.

I have had no significant hallucinations since then. However, it is difficult to determine if the decrease is a direct effect of… read more