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What do you wish your partner understood about what living with Parkinson's is like?
Hello Jud. Your relationship with your wife sounds so delightful and enriching? We should all be so fortunate.
I am welcoming you to my team, Team Sterling as a team member. Hope to hear more about… read more
How do you explain to friends/family when you have to cancel an engagement?
Have you found any programs that make using your computer easier? Do you know of any 'hacks' or tricks to change the settings on your computer or browser that help make it easier to use your computer?
On my iPad and iPhone I use the little microphone to dictate texts and emails. Not all the time but I find them helpful when I'm tired.
Are you open with other's about your Parkinson's diagnosis? Are there certain people you choose to tell/not to tell about your diagnosis?
@A MyParkinsonsTeam Member, First of all, I'm 66 and was diagnosed with Parkinson's seven years ago. So, you are very right in your assessment of my inability to fully understand your life, your… read more
What types exercise do you engage in? Do you feel that exercise helps improve your symptoms? How much or how often?
When I'm not in a hospital or recovering from an illness or a fall, I go to a physical therapist sessions on Monday and Wednesday of every week
I work out on the nustep machine, threadmill, and… read more
How did you make the decision to proceed with DBS? What was your experience with the procedure like? How was your recovery? Did you experience significant improvement in your symptoms? What do you wish you had known prior to DBS? What advice would you offer to someone currently considering DBS?
Have you found anything that helps you sleep better at night?
You can buy melatonin off the shelf at most drug stores. Works for me.
Once you realized that something wasn't right how long did it take to be diagnosed with Parkinson's? Were you seen by a specialist?
My first appt I was told by a neurologist that I was old and I would shake. Nice. I was 53 years old and just recovered from colon cancer chemo treatments for 9 months. Then I tried another… read more
How do you explain Parkinson's to your friends and family? Do you think they understand?
I hid when I was diagnosed with Epilepsy. I told my husband I will not do that again. I told all my friends and family.
What has been your experience with the side effects of your Parkinson's Medication?
No
