what are you thankful for and Parkinson's disease | MyParkinsonsTeam

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Top 10 Search Results for "what are you thankful for"

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I Have Developed Droop Neck I Do Neck Exercise But Little Improvement I Have Very Short Walking Distance. I Am 77 And Have 13 Years Diagnos
A MyParkinsonsTeam Member asked a question 💭

Has anyone found neck or back supports helpful

A MyParkinsonsTeam Member

After seeing this picture, I'm thinking of buying a neck pillow (type you use on an airplane) for my hubby.

Extreme Paranoia As Side Effect Of Carbidopa?
A MyParkinsonsTeam Member asked a question 💭

Newbie here. At a loss of how I can help my family. My father has been on Sinemet for months-- taking the pills makes life "kind of" worth living again, but the negative side effects are beginning to take a toll. He is very paranoid and jealous, accusing his spouse of cheating. It's becoming so difficult for her, who does nothing but love him and take care of him at the expense of her own mental health. She tries to explain to him that this is a side effect of the medication, but he does not… read more

A MyParkinsonsTeam Member

I have not encountered any problem. I take 2ea four times daily and four hours apart..

Has Anyone Had A Rash Taking Azilect
A MyParkinsonsTeam Member asked a question 💭

1large red place size of egg and more size of a dime

A MyParkinsonsTeam Member

I have not taken this med yet. What is it for?

Anyone Have Muscle Pain That Parkinsons Ned’s Do Not Help?
A MyParkinsonsTeam Member asked a question 💭

Have been diagnosed with Parkinson’s 4 years ago. Doing great on low doses of Sinemet and Mirapex. About a year ago developed muscle pain which is worse in the morning (mostly on the left side buttocks and low back). Increasing med’s did not help. I keep exercising but some days the muscle pain is so bad I do not want to exercise. I have tried everything from exercise, stretching, Tylenol, topical analgesics, trigger point therapy, massage, tens unit etc. Nothing seems to help. I believe it is… read more

A MyParkinsonsTeam Member

Where can I meet this Parkinson’s Ned?

To All Who Have Had DBS, Are You Happy With The Battery Choice?
A MyParkinsonsTeam Member asked a question 💭

Some people feel that the double battery is uncomfortable and the thinner rechargeable is better. What do you feel? Also has anyone had their stimulator put in your stomach area, not your chest? I am too thin for the chest area so my doctor suggested stomach area. Bean

A MyParkinsonsTeam Member

thanks
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Looking For A Comfortable Bed. Any Suggestions?
A MyParkinsonsTeam Member asked a question 💭

My husband has a hard time getting comfortable in bed consequently he doesn't sleep well. Does anybody have a good suggestion for a mattress/bed? We're hoping a different matress might help.

A MyParkinsonsTeam Member

My wife and I have more than one home and we share a sleep number California king in each of them. Yes they're expensive, but well worth the money.

Drug Cost After Medicare
A MyParkinsonsTeam Member asked a question 💭

Are there any resources for medication prices after 65 and on Medicare? We have a drug plan, but Gocoveri & Rytary are brutal costwise . I have looked at the Good Rx in addition & to reaching out to the company of each drug. I am afraid, I am learning that if you are on a government program ( Medicare ) the company's help in copay is not allowed. Crazy.. Any leads for me to help with reducing an extremely high drug cost monthly.. Lyn

A MyParkinsonsTeam Member

Finally, and thankfully, the Medical University has something like a PAN Foundation and helped us /him with Rylary and Gocovri . We were very thankful. It would behoove anyone to look in the… read more

Digestive System Issues
A MyParkinsonsTeam Member asked a question 💭

What are some issues are any of you experiencing with your digestive system. And, are you having issues everyday? I’m having everything from bloating, heartburn and indigestion to nausea and vomiting. I’ve been worried that there’s something else going on but I’ve read that PD can cause all these issues. Thank you for any insight!

A MyParkinsonsTeam Member

My bowels actually stopped working, no motility had to get an ileostomy bag had for 8 years now, also they gave me a neuropatch for neuropathy and for one full year couldn't eat nothing but soup, took… read more

I'm Curious About What Others Experience In That Morning Time Period Between Getting Up And When
A MyParkinsonsTeam Member asked a question 💭

you take your first dose of levodopa. Do you have strong symptoms and are therefor eager for your first dose? Do you then get noticeable relief?

A MyParkinsonsTeam Member

Jim says he doesn't have strong symptoms when he wakes up. He takes his last pills at 9 pm and the first ones as soon as he gets up, usually at 8:30 or 9:00. He occasionally has balance issues in the… read more

Have Any Of You Used CBD For Parkinson Agitation? If So What Kind: Tincture Or Gummies? What Kind?
A MyParkinsonsTeam Member asked a question 💭

My husband is in the final stage of Parkinson and at this point we are trying to keep him comfortable. He is on Hospice and we do NOT want to use morphine and so are exploring other options. Currently, the Memory care unit is using valium as a calming drug. We have heard that cannabis may have some positive helps with Parkinson patients. At this point we are considering a tincture with a drop under his tongue in the AM and the 1/4 gummie at night. Am totally lost as to what kind? Have any… read more

A MyParkinsonsTeam Member

How so?