I understand low BP can be a manifestation of PD. My ex-husband frequently passes out when standing up due to low BP. They adjusted down the cardidopa/levidopa down and increased the low BP med, but the BP still stays low and now the tremors are back. Anyone else run into this problem?

Hi everyone. I’m asking this on behalf of my ex-husband (we’re dear friends). He recently developed Hemianopsia which is a temporary loss of vision. The way he explained it to me was if someone had taken a piece of paper and from his forehead they lowered it down so that he can only see half of what he normally sees. In other words, if he had this come on and he looked at me, my head and shoulders would be gone but everything else down would be there.

Right now it’s only in one eye an it… read more

I, myself, do not have PD but my ex-husband (and very dear friend) does. He has horrible pain in his lower back and legs and can't stand for more than 2-3 minutes. They gave him several medications and they all caused immediate nausea. We were both very disappointed. I'm wondering if accupuncture would help. Has anyone tried that? Thanks so much!

I believe I asked this question before with few answers, probably because there are no answers.

My ex-husband (and best friend of 49 years) has PD. The tremors are under control but his blood pressure is extremely low. I don’t live with him but he tells me often that he passes out when he stands up which, of course, alarms me greatly. He went to the doctor about 4 weeks ago and the top reading of his BP was 50. That’s extremely low. The meds prescribed to lower it aren't working. There… read more

What do you wish your partner understood about what living with Parkinson's is like?

My ex-husband’s PD is definitely progressing and, at least to me, at a rapid pace. His blood pressure is the biggest problem and after trying many meds, nothing seems to work. Now he tells me that he’s having balance problems not related to blood pressure. He knows he’s going to fall so stays on carpeted surfaces. He’s losing weight because he stays out of the kitchen because it isn’t carpeted.

Have any of you had any luck with Medicaid? If so, what help? How did you navigate the system… read more

How do you explain to friends/family when you have to cancel an engagement?

Have you found any programs that make using your computer easier? Do you know of any 'hacks' or tricks to change the settings on your computer or browser that help make it easier to use your computer?

Would love some feedback as to how others have handled this surgery.

How it has improved symptoms.

How has it changed your quality of life.

Are you open with other's about your Parkinson's diagnosis? Are there certain people you choose to tell/not to tell about your diagnosis?