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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
I'm trying to figure out if I should get another I've had 3 shots already
What do you think?
I'm in the early stages
Before anyone takes another vaccine I recommend that you look up the connections between The exposure to aluminum and neurological disorders including Alzheimer's and Parkinson's.
Studies going back… read more
What about RVS? I am. not finding anything about PD and RVS. please help me out. Blessings, JudyTx 🌹
I haven’t heard anything either
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
Still have tremors and more RLS too
I realize if COVID did cause my PD it doesn't matter. I have it and have to deal with it and live with it. And that's all there is to it.!
These questions and responses were recently published on the My Parkinson's Team Website as part of a larger article titled "do Covid 19 Vaccines Worsen Parkinson's Symptoms?" Please see the full article for additional detail.
Should you be worried about getting COVID-19 while living with Parkinson’s disease
Some studies earlier in the pandemic showed that people with Parkinson’s had a higher risk of getting COVID-19 compared to people without it. However, health experts currently believe… read more
Luckylady, thanks for sharing your experience. I hope you are feeling better. Do you think this reaction will change your decision to get this and other vaccines in the future? Did your doc make any… read more
Do COVID-19 Vaccines Worsen Parkinson’s Symptoms
While not everyone experiences worsening Parkinson’s symptoms after getting the COVID-19 vaccine, studies have found that some people do. The changes in symptoms are different for every person.
In one small study, 41 percent of study participants reported that their Parkinson’s disease symptoms worsened after the COVID-19 vaccine. These symptoms included tremors, cognitive issues, fatigue, gait/balance issues, loss of smell, sleep problems… read more
Me too! That is my brothers complaint! Remember when they ran out the swine flu vaccine during the late 70’s early 80’s
I use audio books. I can listen to the audio at night to help me fall asleep.
My step mom has finally opened up to asking my dads doctor about CBD as an additive to his regime of medications. I found out today that they are just taking 22mg of hemp oil...brand name common sense to help with sleep. What else should they be asking the doctor for? His tremors have gotten worse.
I have heard it works for some people and not others and dosage and strength and quality is crucial. I tried in when i was in New Hampshire for 10 days in August and everyday i had to modify. But… read more
I was watching a program about t m i and so called it helps with anxiety and gives mindfulness?
I agree with @A MyParkinsonsTeam Member, breathing exercises really help.
