Quick Links
Resources
About MyParkinsonsTeam
Powered By
im having problems eating certian food had an endoscopy tey found
nothing wrong so he said it be caused by the parkins
Yes certainly. What Les said again ! 😄
Every patient has their own Parkinson’s. My tremor had only recently manifested. I’ve had Parkinson’s for 6 years by diagnosis ( much longer in reality). Tremor free.
My symptoms were mostly… read more
I’ve attached an excellent article that explains a little bit about non-motor symptom. It includes a runny nose, but does not say anything about congestion. I they couldn’t find anything that… read more
Hi All, if you have had DBS could you let us know of the process before the op and the post-operative outcomes.
Below is a portion of an update on the current state of DBS. It was published by NIH on the PubMedCentral site. You can search for the entire article on the PMC site under #PMC (Phone number can only… read more
This after 12 hours total sleep and at least hour’s nap.
The other thing they don’t understand is how different it can be from one patient to the other. Some of us look good because of PD manifests with non-motor symptoms.
It has been over a year since my first neurologist appointment. Since I had no motor symptoms, he was unable to give a definitive diagnosis. I still don't have any motor symptoms but did have a DaTscan that was indicative of Parkinson's or Lewy Body Disease. I'm going back in a week and a half for my follow-up appointment. I've started with hallucinations--not many and not frequent but disconcerting nonetheless. In my local boxing group, no one else has REM sleep behavior disorder and everyone… read more
Already take it for the RBD, along with a low dose of clonazepam. The hallucinations occur when I am awake, usually before I fall asleep but in a low light environment. I’ve added a nightlight to the… read more
Flucuations in my symptoms happen.
However I still have PD. Im sure
It could be in remission of symptoms at times that is all Im
aware of.
Kathi
I am on [[treatment:Stalevo:55d552481fcaa30c[[phone:37000045]] 200:]] mg with 3 doses per day. Recently I am experiencing wearing off symptoms (both motor and non-motor. Anybody here faced this issue? What is the best way to manage this. BTW I am also taking Amantadine (2 doses 100 mg each). Any suggestions of strategies that worked ?
Have you contacted the Neurologist who prescribed your treatment?
The DATSCAN is the only definitive answer. All the test etc. are just a waste of time. Good luck.
I was with my Dad this weekend, and told him that I've been noticing some cramping in my right foot. It's been going on for the past 3 or 4 months at least, and I have also had some mild cramping elsewhere all over my body, but the foot is persistent. Dad said that this was his first symptom and that I should have it checked out. He was diagnosed at 60, but I'm only 32 and understandably a little shaken at the prospect. I wouldn't be the least bit surprised, since Dad and I are so similar in… read more
My grandson notices my lips 👄 was trembling in 2019. Didn’t see a Doctor until 2020 because of COVD
