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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
Any PD groups in Indian Land or Fort Mill area SC??
Here’s the list for the Carolina’s.
https://www.parkinsonassociation.org/wp-content...(Phone number can only be seen by the question and answer creators).pdf
Time of day esp in relationship to meals n protein
for Levo/carbo Now on 9 pills
Thanks Ginny
chest x rays are clear; gasping and wheezing. have an albuterol nebulizer that helps some--any body else have this or know what helps? Thanks feeling desperate
My Primary care prescribed Spiriva Respimat 1.25MCG. INH SPR. 2 puffs daily. I also use VENTOLIN. HFA. 90MCG Inhaler for shortness of breath and wheezing. I also use a CPap and keep a canned supply… read more
Neurologist order Sinemet 1 tab, 3 x day. My husband took this for 3 weeks with no change. Doc now wants him to take 2 tabs then increase to 3 tabs to make sure it doesn't work. Has anyone experienced this, did it help diagnose PD, and what were the side effects?
Thank you
Patricia
yes. i take it 3 times a day plussome BP Meds...and other meds from the VA.
keep in motion,walk, exercise just dont sit there.😃
keep smilin
I'm so glad Parkinson's has been kind to you. My prayers for you to continue your journey as well as you are. HUGS.
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
coughing with some congestion. this is in addition to usual parkinson's related cough
Low doses of DXM are beneficial for PD. Higher doses (like the ones found in cough syrup) are detrimental. Neurologist =1 PR = 0
The Lemon Tea and Whiskey sound like the best alternative.
I take the Extended-Release carbidopa. Levodopa 3 times a day (6am or upon waking up if it is later than 6am,, 2pm and 8pm) I take regular C/L twice a day, but I chew it since they no longer make the… read more
Does anyone here go through this? Im at my wits end and so is my wife. Feels like i am going to die everytime.
Im at the point where I cant breathe, cant move, in pain and extremely nervous. This lasts until the next dose kicks in whenever it decides to that is.
I take ER C/L, but then take a regular C/L in between doses and I chew that one so that it gets into my system faster, since the dissolvable one is no longer available. It starts working within 10… read more
