Has anyone that was diagnosed with PD had the diagnosis upgraded to LBD (Lewy Body Disease)? If so, what led to the change in the Diagnosis?
I was changed from PD to LBD because I was having hallucinations. No tremors or movement symptoms.
what is the connection between Parkinsons and Lewy Body Demenita. I understand that everyone having Lewy bodies has parkinsons
There is a good video in the resource section. My husband has Lewy Body Dementia. That means that he has 3 progressive disorders:sleep, Parkinson's and Dementia.
Thank you
My husband has Lewy Body Dementia and I wondered how other spouses deal with this.
My husband, age 80, has LBD. I am trying to learn about Parkinson's. Ann
My husband does not hav parkinsons demetia yet he suffers from halllucinations,is this a side effect of ths drug ? he is on sinemet cr 25 mg 2 x day.Is there anythjing he can take to get roid pf the hallucinations?
I had to cut the 1mg. Xanax in half. Did better.
My mom was diagnosed with parkinson's without the tremors 5 years ago. At a recent neurologist appt., the doctor said that it's not the typical Parkinson's but rather Parkinson Plus with Lewy Body. (She's rapidly losing motor abilities which was the reason for the new diagnosis.) This was the first I've ever heard of the "plus". Anyone else hear of this? Thanks.
I was told I have Parkinsonism with Lewey body dementia
I 🤭 at your (right on)answer in spite of myself
@A MyParkinsonsTeam Member, If it is early in her diagnosis, please pursue good advice from neurologist & realize it will take time for Drs. to find correct prescriptions proper treatments. We are all… read more
Thanks!
cont...He had no other symptoms except the slight things his neurologist picked up on such as gait. (Family had noticed slight cognitive decline. And speech and PT detected slight balance issues that family attributed to strokes.) So all of the advice about what to do for worsening symptoms, etc doesn't seem to apply. Because thus far, none of his symptoms are at all significant. Is it possible he may only suffer from cognitive issues? Or is the worst yet to come? How many people get Lewy Body?
Wow! Thank you!