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I've been diagnosed with PD for about six years now and I regularly see the nueraoigist who made my diagnosis. I find myself wondering if this is the best doctor to continue seeing or are there PD specialists that might provide a higher level of care. How many folks see a PD specialists for their care?
If I were ou I would find either a Parkinson’s specialist ora movement disorder dr
U are doing the right thing. Ur doctor can help
One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more
Possibly. Not som
eveilevodopa
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
It is known that atypical parkinson does not respond well to Levodopa/carbidopa. .It would be interesting to know other alternative treatments. Please share your experience. Thank you.
Absolutely yes to getting a movement disorder Specialist. Finding the right one though can be difficult but all their training is with Parkinson’s and movement disorders so that’s the way to go… read more
Neurologist order Sinemet 1 tab, 3 x day. My husband took this for 3 weeks with no change. Doc now wants him to take 2 tabs then increase to 3 tabs to make sure it doesn't work. Has anyone experienced this, did it help diagnose PD, and what were the side effects?
Thank you
Patricia
yes. i take it 3 times a day plussome BP Meds...and other meds from the VA.
keep in motion,walk, exercise just dont sit there.😃
keep smilin
Yes Definitely!!😁
Thank you
My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
My neurologist says I have DIP. Does anybody else out there have the same diagnosis? I would like to hook up with fellow DIPper to compare medications that might be suspect. My doctor suspects Vraylar, Lithium, and Clonazepam the latter of which I'm weaning off now.
Alison4
Kenneth Bruce you may not intend to sound cold an uncaring. But let me tell you. I was diagnosed with DIP and it was traumatic. It’s not just a snap of the fingers to change teams. Insurance, how do… read more
