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occasionally. I am struggling with deep since of loneliness with pd. I have family in Bakersfield who are encouraging me to move. It is tempting. Though, I am scared. I am seeking helpful thoughts. Thank you.
Have you tried to find a local Parkinson's group near you? How supportive is your family likely to be? Families differ enormously. If you think your family would truly make time for you, then moving… read more
Wow, thanks Lucky. I was introduced to Visiting Angels for home care after breaking my hip and they were wonderful. But I didn't think they offered hourly or P/T assistance. It is pricey but there are… read more
We are talking about moving into an assisted living facility so I can have help especially at night moving Ron. It's expensive and a radical change but I don't want to wait until an awful accident. I also don't want to move and then deeply regret it.
@A MyParkinsonsTeam Member. Dear Mona. God bless your sweet, loving heart. Your entire life consists of agonizing thoughts and decisions about what to do for Ron. My heart....my very soul goes out to… read more
We have a large two story home and I know we need to move. The idea is overwhelming. Share any things you have done to move to a more accommodating environment.
Moved into a one story townhouse about 2 mos. ago. I am a caregiver for my husband with PD. He can no longer do the homeowner duties such cutting the grass and yard work. Our living area is all the… read more
I had an x- ray of my back. I had two broken disk. I had them repaired in one day and then I fell and broke my hip. I had just turned 87 three days before.
At some point your relatives may want to settle you into a nursing home. Here are some of my ideas based on my late 2nd husband's, his friend's and my current husband's sister's experiences. Can you think of more ideas
What are the advantages of moving into a nursing home
1. You won't have to cook your own meals any more. Granted, institutional food is not as healthy or natural as what you might fix for yourself, but normally the meals & snacks are created by professional dietician and are… read more
Funny, I wrote this for an MPTeammember whose relatives were coming to visit her, & I was worried that they were going to put her in a nursing home. It turned out that I was way off base (the problem… read more
It was recommended that I lock my door at night, and he has tried to unlock the door using scissors and a knife. Friends say it is no longer safe for me to stay with him by myself. Has anyone else had experiences like this?
Thank you all. I found a wonderful CNA who will help some nights!!!
Who helps you?
Please include
What is their relationship to you -family, friend, neighbor, church member . . . ?
AND
What do they do to help you?
When I was laid up in agony for two years following a fall in which one of my vertebra moved and my spinal chord was then pinched my hubby had to do everything and he had to learn to cook as well.
My mom was diagnosed with parkinson's without the tremors 5 years ago. At a recent neurologist appt., the doctor said that it's not the typical Parkinson's but rather Parkinson Plus with Lewy Body. (She's rapidly losing motor abilities which was the reason for the new diagnosis.) This was the first I've ever heard of the "plus". Anyone else hear of this? Thanks.
I was told I have Parkinsonism with Lewey body dementia
How Long After your Parkinson's Diagnosis Were you Still Working? Did you try and hide your Parkinson's from your employer? Did you leave the job on your own accord or were you "Let Go"?
I'm still working but I fear my days are numbered. I've fallen at work a couple of times. And I fear I'm becoming a liability for them..
