Quick Links
Resources
About MyParkinsonsTeam
Powered By
My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
Ask your Neurologist!
It may be RLS 'Restless Leg Syndrome'. It can happen to any of us.
I will never forget it. I lost several weeks of living
I was prescribed 25/100 carbidopa/levodopa for my PD tremors. Should I stop taking if tremors are my only symptom?
That is great bews Evan, thanks for sharing. Hope things stay this way for you forever, sincerely.
chest x rays are clear; gasping and wheezing. have an albuterol nebulizer that helps some--any body else have this or know what helps? Thanks feeling desperate
My Primary care prescribed Spiriva Respimat 1.25MCG. INH SPR. 2 puffs daily. I also use VENTOLIN. HFA. 90MCG Inhaler for shortness of breath and wheezing. I also use a CPap and keep a canned supply… read more
The last few years I have suffered much hip pain and I have been on a waiting list for a replacement hip. I was taking 300mg Stalevo total daily, but have reduced to 250 (50mg x 5 Times) + Mirapexin. (1 slow release nightly) in order to reduce severity of dyskinesia. Has reduced dyskinesia but also reduced mobility etc. and still prone to it when under stress. My surgeon witnessed this the day before my hi op was due and is afraid my uncontrolled writhing could put my new hip out and makes… read more
Linda. Bless you. I won’t complain after reading your message. I am 86 and no hip pain. But I am small, don’t weigh much, have exercised a lot for 20+ yrs and maybe that has helped my hips… read more
coughing with some congestion. this is in addition to usual parkinson's related cough
Low doses of DXM are beneficial for PD. Higher doses (like the ones found in cough syrup) are detrimental. Neurologist =1 PR = 0
The Lemon Tea and Whiskey sound like the best alternative.
I take the Extended-Release carbidopa. Levodopa 3 times a day (6am or upon waking up if it is later than 6am,, 2pm and 8pm) I take regular C/L twice a day, but I chew it since they no longer make the… read more
Does anyone here go through this? Im at my wits end and so is my wife. Feels like i am going to die everytime.
Im at the point where I cant breathe, cant move, in pain and extremely nervous. This lasts until the next dose kicks in whenever it decides to that is.
I take ER C/L, but then take a regular C/L in between doses and I chew that one so that it gets into my system faster, since the dissolvable one is no longer available. It starts working within 10… read more
