She is seeing people that are not there at night. Shadows, Hallucinations. At first there was no sleep at night, her Dr gave her a sleep aid witch helped. We both have just this week started Mental health care. What is hard for me is I have no help, she fell and broke her wrist in December, had a plate and screws installed to put it back together in January. It never stops.

Newbie here. At a loss of how I can help my family. My father has been on Sinemet for months-- taking the pills makes life "kind of" worth living again, but the negative side effects are beginning to take a toll. He is very paranoid and jealous, accusing his spouse of cheating. It's becoming so difficult for her, who does nothing but love him and take care of him at the expense of her own mental health. She tries to explain to him that this is a side effect of the medication, but he does not… read more

I'm newly diagnosed and don't know what kind of medical expenses to expect with Parkinson's.

https://tafcares.org/upload
This organization helps offset medical costs.
Maria

I'm shocked and thrilled to learn that this can happen and did happen just yesterday and I really have no idea what to do now after spending most of the past 9 yrs accepting and adapting to PD.
Maria

I have to continue working part-time because Disability does not cover the costs of living. I know many jobs and he uses me everywhere. If someone misses work I do my job and theirs. Many times it's 2 other jobs. Today he wanted me to pop his back, both myself and coworker said no. When I reminded him he said I just use PD and Fibromyalgia as an excuse. I know it's because I push myself til I collapse, in a corner where Noone sees
He doesn't pay me a lot because there's just so much I can make.… read more

The APDA recommends the following resources to information about improving the quality of life by reducing OFF episodes
Communicating About OFF Episodes: This helpful booklet explains why OFF episodes occur, the motor and non-motor symptoms that you may experience while OFF, tips for smoothing out medication to reduce OFF times, and so much more.

Motor Fluctuations Fact Sheet: A quick overview of what motor fluctuations are, what causes them, how to treat them, and more. Also available in… read more

Have been diagnosed with Parkinson’s 4 years ago. Doing great on low doses of Sinemet and Mirapex. About a year ago developed muscle pain which is worse in the morning (mostly on the left side buttocks and low back). Increasing med’s did not help. I keep exercising but some days the muscle pain is so bad I do not want to exercise. I have tried everything from exercise, stretching, Tylenol, topical analgesics, trigger point therapy, massage, tens unit etc. Nothing seems to help. I believe it is… read more