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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
Neurologist order Sinemet 1 tab, 3 x day. My husband took this for 3 weeks with no change. Doc now wants him to take 2 tabs then increase to 3 tabs to make sure it doesn't work. Has anyone experienced this, did it help diagnose PD, and what were the side effects?
Thank you
Patricia
yes. i take it 3 times a day plussome BP Meds...and other meds from the VA.
keep in motion,walk, exercise just dont sit there.😃
keep smilin
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.
It is known that atypical parkinson does not respond well to Levodopa/carbidopa. .It would be interesting to know other alternative treatments. Please share your experience. Thank you.
Absolutely yes to getting a movement disorder Specialist. Finding the right one though can be difficult but all their training is with Parkinson’s and movement disorders so that’s the way to go… read more
I was with my Dad this weekend, and told him that I've been noticing some cramping in my right foot. It's been going on for the past 3 or 4 months at least, and I have also had some mild cramping elsewhere all over my body, but the foot is persistent. Dad said that this was his first symptom and that I should have it checked out. He was diagnosed at 60, but I'm only 32 and understandably a little shaken at the prospect. I wouldn't be the least bit surprised, since Dad and I are so similar in… read more
My grandson notices my lips 👄 was trembling in 2019. Didn’t see a Doctor until 2020 because of COVD
i didnt know how to do that either but now i do thanks
has anybody heard about the parkinsons glove for movement disorder ?
Now look here ........ I posted on the 22nd and no one has liked my pun. You have to understand that without any acknowledgment of my attempts at humour the dark clouds swamp me, I loose all sense of… read more
I don't have tremors on any kind of regular basis, except on occasion when I hold my arm in a certain way. But no tremors otherwise. And I found out that I don't have PSP, so that was so good.
(editng to say i was wondering more specifically if anyone here has been diagnosed young). I’m worried my doctor will poopoo my suspicion of parkinson’s because I am 38 And don’t have a visible tremor yet.
My first symptoms showed up when I was 5, freezing and gait issues. The doctors at the time couldn't figure out what was wrong. They finally came to the conclusion that I was having a severe and… read more
