My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
I have constant ringing in my ears. It never stops.
I have had Tinnitus for years, way before iwas diagnosed with PD
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
Parkinson can cause you to die but you don't have to
Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗
Ok long question sorry. I have been seeing a neurologist dr heck since 2009 when I was diagnosed with epilepsy she is 10 hrs away. I moved and had to get another one closer 3 hrs away dr sachar. The new one diagnosed me with parkinson and have been treating me for both epilepsy and parkinson. I really like her... well once a yr I go see dr heck because i just let her know how things have been, with life in general. Well I told her that dr sachar had diagnosed me with parkinson. Dr heck said no I… read more
All we can do is make comments, this final decision is yours! I will give this recommendation to you. Drop the doctor who is 10 hrs away. Then see your family doctor, and tell your doctor all the… read more
As we Parkies know there are other horrible things we have to put up with eg. grunting, runny nose in the morning, to much saliva, constipation, bladder problems including incontinence, leaning to one side, sciatica, I know there are more. Who can add to the list?
@A MyParkinsonsTeam Member - wow! Now we're really getting somewhere! That helps SO much! Thank you for that effort!
Does anyone experience painful hand and feet. In the left hand my index finger is painful and swollen round the joints, and unable to bend it. Could it possibly be gout?
I had carpal tunnel syndrome in my right arm which needed surgery last year. This pain is more isolated to the left index finger and very different altogether. Research online suggests gout or maybe… read more
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