My mom was diagnosed with parkinson's without the tremors 5 years ago. At a recent neurologist appt., the doctor said that it's not the typical Parkinson's but rather Parkinson Plus with Lewy Body. (She's rapidly losing motor abilities which was the reason for the new diagnosis.) This was the first I've ever heard of the "plus". Anyone else hear of this? Thanks.

what is the connection between Parkinsons and Lewy Body Demenita. I understand that everyone having Lewy bodies has parkinsons

My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?

cont...He had no other symptoms except the slight things his neurologist picked up on such as gait. (Family had noticed slight cognitive decline. And speech and PT detected slight balance issues that family attributed to strokes.) So all of the advice about what to do for worsening symptoms, etc doesn't seem to apply. Because thus far, none of his symptoms are at all significant. Is it possible he may only suffer from cognitive issues? Or is the worst yet to come? How many people get Lewy Body?