My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.
Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗
This does not sound right but everyone is different. I would get a seccond opinion.
I have shoulder pain and neck pain, does that have anything to do with Parkinson ?
My mom had terrible shoulder pain until she started Amantadine. It really helped, and very quickly too. Sometimes she has stiffness or tightness that causes pain, the heating pad helps that.
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
The recent media blitz about a leukemia drug named Nilotinib as a potential treatment for Parkinson’s disease resulted in thousands of patients and family members phoning their doctors and our 1-800-4PD-INFO Helpline requesting access to this drug. The National Parkinson Foundation quickly responded with a public statement recommending that patients not pursue this therapy unless under a clinical trial. There were serious concerns in the size and methodology of this initial report which was… read more
J
Parkinsonism is suppose to be worse than just PD. It is more involved with your movement mobility, so they say...
I don’t sleep at night either. Parkinsons causes sleep disturbances and so does carbodopa levodopapjm.
Pjm🌹