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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.
I seem to not be able to control my anger as of late. I say too many things that can not be unsaid and have to constantly apologize, it's like my filter went away! What I say is always valid, but still hurtful. And then come the tears and sobs. Because I feel horrible for being an ass, then feel sorry for myself lol.
I feel that it all comes from pent up frustrations from just everyday bs, dropping things, forgetting things , another trip up the stairs, etc., etc.
Anyone else relate?
To Luckyladybb
I had a fully torn rotator cuff., for 3 months. I was in agony and tears 😢
When they saw it I was scheduled immediately for the surgery. For 6 months I was in pain and rehab. It was… read more
How did your neurologist differentiate between the 2? I know this isn't an entirely Parkinson's question, but I would like to know if anyone else has been told it might be MSA.
Alan, I reached the point of thinking I just couldn’t go on intil I took the big program and the physical therapist mad the call then I was sent bu to my neurologist who had gone over every symptom I… read more
One neurologist says I have Parkinson's and put me on Sinemet. Another neurologist from the same office says that I don't have it and thinks my neck, lower back and anxiety are what is causing problem's with my shaking and my walking. So he will be taking me off the Sinemet gradually to see if he can tell what my problem really is. I've also had other tests. My question is once I'm off the meds will I know whether I have the Parkinson's or not? If my symptoms stay the same and don't get… read more
Possibly. Not som
eveilevodopa
Thank you all for your answers. It answered a lot of my questions
I'm so glad Parkinson's has been kind to you. My prayers for you to continue your journey as well as you are. HUGS.
