My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?
I have never heard of these drugs. I will stick to THC it alot more natural.
Still have tremors and more RLS too
I realize if COVID did cause my PD it doesn't matter. I have it and have to deal with it and live with it. And that's all there is to it.!
My husband was told by one doctor that it was Parkinsonism from a bad fall. He is treated the same as Parkinson's. It is very hard to find information that separates the difference of the two.
This is what I found . The timing of protein intake during levodopa administration is crucial. While some individuals may not experience issues with protein intake affecting medication absorption, for… read more
Has anyone got any of the above and how are they coping. Are you able to get about easily, has your memory been affected. Has anyone found any of the above drugs working or can recommend any others.
I am taking clonazapan, madopar, movical,solifenacin, amitriptiline, fludrocortisone,
👋 Frances 10,
Miracles do happen. I'm so happy you have had one.
I invite you to have a look at my story page. I have a lot of useful ideas there. Just press on my name and it will pop up.
Love… read more
Erinanne! 🤗🤗🤗🤗🤗🤗🤗🤗
I get tired of hearing people say that you don't die from Parkinson's. Instead you die from losing your balance and falling. You die from choking because you no longer can swallow. You die from sepsis or multiple system failure.
Following that logic can you say that someone didn't die from COVID? Instead they died from sepsis, pneumonia or many other related illnesses?
From my point of view, I recognize that many people with Parkinson's can live many years after their diagnosis. Albeit with… read more
you are a brave brave soul
This does not sound right but everyone is different. I would get a seccond opinion.
Neurologist order Sinemet 1 tab, 3 x day. My husband took this for 3 weeks with no change. Doc now wants him to take 2 tabs then increase to 3 tabs to make sure it doesn't work. Has anyone experienced this, did it help diagnose PD, and what were the side effects?
Thank you
Patricia
yes. i take it 3 times a day plussome BP Meds...and other meds from the VA.
keep in motion,walk, exercise just dont sit there.😃
keep smilin
My husband was diagnosed in December at age 69. He has been going to the gym -- mostly walking on the treadmill and using the rowing machine. I'm wondering if there are specific exercises he should be doing and if a trainer would help. Thank you and warm wishes for your journey.
@A MyParkinsonsTeam Member Thank you for the 🫂 hug and here's a hug 🫂 for you.Have a wonderful day today 😀. Julie Olson 2.